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Epanutin price rise

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Epanutin price rise

Post by caffeine needed on Wed Oct 31, 2012 1:06 pm

I heard this on the radio this morning and am totally shocked.
Epanutin is a drug which is used to treat many epileptics, myself included.
A new firm has taken over the rights to make the medications and has not changed it in any way, thank goodness for small mercies.
However they have incresed the price from 66p for 28 to £16.00 for 28!!!!!
The report said that g.p's may start to change people onto different medication or have to stop other services which they will no longer be able to afford.
I certainly dont want to change drugs - this was tried a good few years ago when I took 3 epanutin and 2 phenobarbitone. The pheno was stopped and replaced by Epilim and then the Epanutin was slowly decreased. This was a disaster and resulted in the doctors having to increase my dosage from 3 to 4 Epanutin to stablilise me again!!!.

Epilepsy research uk say Epanutin is used by most epilepsy sufferers, surely this price increase is totallly wrong?
But now what do I do? I certainly dont want to change nor do I want to feel that other services are in jeorpady because of me. Oh what to do perhaps I should offer to pay for my Epanutin- epilieptics are exempt
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Re: Epanutin price rise

Post by Daniel on Wed Oct 31, 2012 1:42 pm

What a joke - that's what you get when companies have a monopoly. I don't see why the NHS doesn't create it's own commercial pharmaceutical production network. They have a large enough need and they would save billions over time.
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Re: Epanutin price rise

Post by Gracie on Wed Oct 31, 2012 3:58 pm

That's awful, caffeine. I agree with Daniel - if the NHS could produce it's own drugs, they would save a fortune over time. But, given all we read in the press - from Trusts going bankrupt to scarily poor standards of care - I don't think it's likely to happen.

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Re: Epanutin price rise

Post by Lil Miss Sunshine on Wed Oct 31, 2012 8:01 pm

OMG! What a price hike!! This is ridiculous, surely the government need to look into this and I agree NHS should produce it's own drugs
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Re: Epanutin price rise

Post by caffeine needed on Thu Nov 01, 2012 10:59 am

it seems the government used to 'ring fence' this drug but this is no longer the case!. The problem here is so many epileptics are stabilised on this drug and if g.p's can no longer afford to prescribe them another type of drug may not work as well. Also of course any fit leads to a loss of driving licence which for me would also lead to the loss of my job as I cannot get to work without my car
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Re: Epanutin price rise

Post by Lil Miss Sunshine on Thu Nov 01, 2012 11:40 am

Sadly they don't think of all the knock on effects changes like this will have on people's lives. Makes me mad!
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Re: Epanutin price rise

Post by Hufflepup on Sat Nov 03, 2012 8:54 pm

Omg Helen that is dreadful! Surely if they find the you can only take this one drug they will cotinga to provide it for you... A few months back the pharmacy tried to give me an imported version of my drug (which is one that they also use for epilepsy!) it made me so ill ! That my Gp has now written on the prescription that it must be a non imported version , even if it costs more
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Re: Epanutin price rise

Post by caffeine needed on Sun Nov 04, 2012 9:42 am

I'm sure things will come out in the wash Epanutin is also sold as Phnytoin and I'm still trying to find out if this has been taken over by same company. However it is not my 'comfort blanket' Epanutin, I was prescribed it once when Epanutin was not available and I felt shakey for months even when I was back on Epanutin.
Anyways we shall see what occurs!
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Re: Epanutin price rise

Post by Lil Miss Sunshine on Sun Nov 04, 2012 11:00 am

Fingers crossed Helen xx
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